May has had some highs and lows. Last month we were scheduled to go to Disney World but the day before Martin was hospitalized. It turns out he had bilateral facial palsy. The palsy itself is not very rare, but bilateral is VERY rare. We are so thankful he's okay but Edison quickly set his sights back on Disney World. So we rescheduled for May. Lo and behold, 2 days before we were to leave:

That's Edison being transferred to CHOP from our local hospital. He collapsed at school in what has been one of the scariest episodes yet. When he got to the ER he was unresponsive and I don't think we've ever been so scared. At CHOP they determined he had likely had a seizure. We are not 100% sure what caused it but it could just be that he's a little more prone given his preemie issues. Here he is having his EEG:

Luckily he was discharged the next day and we got the go ahead! Disney, here we come!


Then we headed to St. Augustine to visit Aunt "Mokina", Uncle Tyson and cousins Elyse and Mina for some fun in the sun...


Cousins = Love





This is the face that I will always remember from the month of May: pure Joy. And he is.

That's Edison being transferred to CHOP from our local hospital. He collapsed at school in what has been one of the scariest episodes yet. When he got to the ER he was unresponsive and I don't think we've ever been so scared. At CHOP they determined he had likely had a seizure. We are not 100% sure what caused it but it could just be that he's a little more prone given his preemie issues. Here he is having his EEG:

Luckily he was discharged the next day and we got the go ahead! Disney, here we come!


Then we headed to St. Augustine to visit Aunt "Mokina", Uncle Tyson and cousins Elyse and Mina for some fun in the sun...


Cousins = Love





This is the face that I will always remember from the month of May: pure Joy. And he is.

1 Comments:
I'm so glad that everything turned out wonderful! Great, great pics!
Love,
Melanie
Post a Comment
<< Home