Friday, August 01, 2008


Sleepy pumpkin. Edison was getting his feed today and I noticed he got awfully quiet. He was out. I thought the cup tucked in his shirt was a nice touch. You'll see his shirt is dirty. That's from LUNCH! He ate about 1 oz of pureed spaghetti o's, a few bites of pureed carrots (not baby food, canned - apparently g-tube kids like salt) and about 4 bites of rice pudding. That's a nice well rounded meal :) We're trying to use more textures and table food. The rice pudding was a little much but he's getting there.

It's been a good week overall. Edison did start the week with a limp that led to a few visits to the doctor. He's had this off and on on occasion. They think he just pulls a muscle because of his activity level. He has low muscle lone and a lot of low tone kids are very inactive, not our guy. He's climbing, running and moving constantly. But it got better after a few days.

Another thing I wanted to tell you about Edison, something that we've been noticing more and more, is he's quite the little navigator. A few examples:
*When we were in Austria we were in a very dense neighborhood and Edison said, "Uncle Peter's House!" I had no idea where we were but Opa confirmed we were just about 100 feet away.
*Driving down the highway Edison pointed to a particular exit and said, "Baby Store". Sure enough, that's where Babies 'r Us is, a store Edison's been in only a handful of times.
*We drove through a neighborhood where we had been to a baby shower the day before. Edison pointed to the exact house of the shower (that he had been to ONE time) and said, "Per's house!"
It's really amazing. We emailed a psychologist familiar with Edison about it and she's going to get back to us. Apparently it's called "wayfinding" and is not common with kiddos so young. Our little smarty pants.

The last little news this week is we found out we will be featured on one of the Neonatal Follow-up brochures for CHOP. That's exciting! I'll post a picture when I get a copy. Not sure when it will come out. We are so indebted to that team. So this was a great feeling.

That's it. We're off to Boston tomorrow! Edison is excited to ride the train. Martin has a conference and we'll be visiting with Auntie Shannon and Edison will meet my friend Melanie. See you next week!

1 Comments:

Anonymous Anonymous said...

Jen,
This is all wonderful news!
I can't believe you will be in Boston!
I live about 30 miles North!
Edison is indeed a smartie. Every day I am amazed at what else he can do , say , sing , eat, etc.!

Have fun tomorrow and I will look for photos!
Core Board Debi:)

9:03 PM  

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