We had Edison's "IEP" meeting this morning. This acronym will become a part of our lives for a while. It's an Individualized Education Plan. The whole process has been a little disheartening. To be honest I can't remember if I've talked much about it on here. We had his evaluation a few weeks ago and he tested MUCH lower than what he's actually doing. (For expressive language they classified him as being "nonverbal" and compared his skills to a 0-5 month old). So we were very upset about it but because the end result was still consistent with what we were aiming for (a half day in a preschool disabled classroom) we just kept our focus on our amazing little nonverbal boy who loves to ask for "Big Hugs" all day.
So the meeting today went okay, we just wanted it reflected in the report how much we disagreed with the report and its findings. As a woman, it is hard to walk that fine line between being a strong advocate for him and not being considered a you-know-what. I found that a daily struggle in the hospital and see that it continues now. But as my mom told me today I just have to look at the little boy and not feel one ounce of guilt about fighting hard for him. I will always have his back.

6 Comments:
Jen,
Hugs to you-- bi hu!!
As a teacher and a parent, I have sat on both sides of the IEP table. I fought hard for three years ( in a different way) to get Ben diagnosed with his LD and not labeled lazy. He still has the LD... but
He has just been accepted to college and I know that Edison will continue to do great things. ALWAYS fight. You are his first teacher and his biggest advocate!
Debi
...As you should! I'm not at all worried about him - or about you. love...
dobie
And we have your back. You never cease to amaze me Jen. Edison is lucky to have you as his advocate and his very devoted and loving mother.
Love you,
Kim
As mothers, fighting for our children is like second nature. We do it without a second thought. You are doing an exceptional job! You have made sure that all of the early childhood intervention is there for him. You are ahead of the ballgame!
Love,
Melanie
My 1 month old certainly can't say "bi hu" like your verbal wonder boy can--0-5 months?? Unbelievable!
Being such a new mother, it is only now so clear to me how much I would go through for my little girl. You do what you feel is right for Edison and your family, the rest will work out the way it is supposed to.
Monica
Jen, I don't understand how they come up with all of those measurements, but the worst part is how children are labeled. You need to fight like a tiger for your little cub. I read your blog ALL the time and can't see how they could categorize little Edision in any of those ways. He's a magnificent child who has developed beautifully despite his hard beginnings. I don't know who those folks were seeing when they wrote the report, but it certainly couldn't have been the little boy the rest of us see.
Cathy aka cmw0829
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