Monday, October 02, 2006


We are glad to be on a "kiddie" roller coaster as opposed to the full blown adult roller coaster that was the NICU, but there are still little ups and downs. I will tell you about both.

Today has been a little bit of a downer because we got the results of some testing our physical therapist had done. This test measures stationary skills, locomotion and object manipulation. She did the same test 3 months ago and the theory is that a child will progress 3 months developmentally in that time frame. In the test Edison is measured against other children who were born in April, the month he was due (as opposed to February when he was born), so his "adjusted age". He has made some progress in all areas, but the progress is so small that the overall test score is down from the previous testing.

While this is frustrating we have to keep in mind that with all standardized tests there can be a lot of variation on something like this. For example he demonstrated several things today that had he done last week would have resulted in a higher score. So we are trying not to focus on it but rather to focus on what he IS doing.

I can cautiously report that Edison has begun to walk. He can't stand up on his own and start walking but when you steady him, he can consistenly take 10 steps on his own. This is huge. We are just thrilled by this development and are really trying to focus our energy on this rather than get bogged down by tests.

Step by step.

4 Comments:

Blogger NaomiGibbs said...

I needed a "Dinky" fix, so I decided to check the blog, and there he was, sweet little thing wearing a gorgeous blue Carolina shirt! In the picture, he is manipulating the manipulatives, standing steadily, and looking as one who has the world at his beck and call.

I'm glad you have a realistic perspective about standardized tests. D's continued growth and development is amazing. And, hey, he's walking!! Choo-Choo!

love,
dobie

8:28 PM  
Blogger Pa Mood said...

Just seeing Edison in that UNC shirt tells me he is special in many more ways than a test can tell. I noticed that while you all were here he showed a tiny stuborn streak when you were trying to get him to "show off". I bet he was messin' with the PT just a bit. Either way, he is doing great and we are so proud of all of you for what has been accomplished.

Love ya bunches,
Pa

10:53 AM  
Blogger Terri said...

You know, I sometimes wonder why they have those standarized tests! My youngest was deemed delayed at 1 year and 2 months because she showed no interest in walking, none. She was talking, but that wasn't on the test they were giving her, so it didn't matter that she could, and would, hold a complete conversation.

Today at 6, you can't tell by looking at the kids in her class, who walked first, who spoke first, who potty trained first, or any of the things "they" deem important!

Dinky, you have a very special mommy who can see passed all the negative things others can say, and see how big and strong and bright and absolutely beautiful you are!

You are doing great!! My 3 kids all want me to add here that they were all over 16 months of age when they started walking, and they didn't spend a lot of time in the hospital!

Be who you are Dinky, the very special, very loved little Carolina fan!! Sorry, I forget if it is North or South! Don't hate me too much for that :-)

12:23 AM  
Anonymous Anonymous said...

I am tempted to write a lot; I will write a little.

These "soft" science evaluations drive me crazy. Crazy! Crazy! Crazy!

They first said my son was too slow to go to first grade . . . and then it's, "Oh, we're going to put him in the gifted class . . . He's a Marine now, served in Iraq one Christmas and worked on Toys for Tots the next.

Of course, he can't carry a tune too well . . .

9:02 AM  

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