What a day! We spent an unexpected day in the ER!! We had to change Edison's g-tube (Feeding tube) at home and the hole it goes in was a little swollen so I couldn't get the new one in! Poor Edison, his little site was so sore and painful. So we drove to Philly and spent 6 hours in the ER for them to take 30 minutes to put a new tube in! Edison was a champ. He handled it better than anyone. He cried and cried while they put the g-tube in but within 5 minutes afterwards he was smiling at the surgeon. He really is something. I want to be like him when I grow up :)

4 Comments:
I don't know if your WW friends post here regularly and I'm sorry if I'm intruding, but Jen and family, I just want to send some prayers and well-wishes to you all! Edison is such a beautiful boy and he's doing so well! I enjoy reading about his progress and his success! You have one strong, miraculous little boy on your hands and I'm so happy for you all! I've read everything you've been through and am inspired by your strength and love. Edison sure has some wondeful parents and family members!
He truly is an inspiration to us all. I am reminded of the Biblical verse (Isaiah I think) that prophesies - "a little child shall lead them." Be mindful though, sweet J-Pooh, that sweet Dinky's remarkable parents have led the way for him - and for us. Much love to you three, and I hate that he had another (I'll borrow his cousin Isla's word) "boo-boo."
dobie
WOW!! I am with you, Jen, I wanna be like him when I grow up too!! OUCH!! Not to mention how scarey for you!! Just know that we continue to pray for you guys.
I want to be like Edison when I grow up too! What a trooper.
s
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