The past few weeks, leading up to this bronch, I have been trying to differentiate between general (and perhaps irrational) worry, and mother's instinct. I will never doubt my instinct again. Unfortunately things did not go well and Edison is back in the hospital. I am so tired right now so I think I'll just give you the play by play:
Edison had his study which went well, there were no complications (other than one IV coming out and their having to put another in). In fact the findings of the study were encouraging. It didn't appear that Edison's tracheomalacia (floppy airway) was really an issue. The membrane in his trachea would collapse on occasion but the cartilage stayed firm, much better. They also flushed out his lungs a little bit and things seemed fine.
So we waited in the recovery room about 1-1/2 and then they cleared us to go home. On our way out we stopped by the NICU to say goodbye to our friends there. While there we noticed Edison's nostrils were "flaring" a little bit, a sign that he was working to breathe. So we stopped back by the sedation unit "just to be safe". Well, when we got there he really was working to breathe, his respiratory rate and heartrate were up and his oxygen level was down (not dangerously). So they gave him some oxygen and we were just going to wait it out an hour or two to see if this would resolve.
During this time the retching episodes (that had been down to one a day) kept happening over and over and over. He literally had 5 in about a 40 minute time span. And then he threw up! Because of the stomach surgery he had back in August (the Nissen fundoplication) he shouldn't really throw up so this is discouraging on several levels.
After he threw up he had a lot of gas and a few poops and the retching seemed to get better. So we just don't know what's going on. Maybe the medication they gave him "backed him up" a little bit, maybe things stirring around in his lungs is doing it. Who knows. No one has really been able to give us an indication of what's going on.
His oxygen level is still not where it should be and he is getting a little "blow by" of oxygen off and on. We are all hoping and praying that he just needs to sleep it off and he'll be better in the morning. They have stopped his feeds because that seemed to be exacerbating the retching. They are going to try and just give him Pedialyte but if that doesn't work they will have to put in an IV.
I really just don't know what to say. I just hope that things look brighter in the morning.
We'll definitely keep you posted.
Edison had his study which went well, there were no complications (other than one IV coming out and their having to put another in). In fact the findings of the study were encouraging. It didn't appear that Edison's tracheomalacia (floppy airway) was really an issue. The membrane in his trachea would collapse on occasion but the cartilage stayed firm, much better. They also flushed out his lungs a little bit and things seemed fine.
So we waited in the recovery room about 1-1/2 and then they cleared us to go home. On our way out we stopped by the NICU to say goodbye to our friends there. While there we noticed Edison's nostrils were "flaring" a little bit, a sign that he was working to breathe. So we stopped back by the sedation unit "just to be safe". Well, when we got there he really was working to breathe, his respiratory rate and heartrate were up and his oxygen level was down (not dangerously). So they gave him some oxygen and we were just going to wait it out an hour or two to see if this would resolve.
During this time the retching episodes (that had been down to one a day) kept happening over and over and over. He literally had 5 in about a 40 minute time span. And then he threw up! Because of the stomach surgery he had back in August (the Nissen fundoplication) he shouldn't really throw up so this is discouraging on several levels.
After he threw up he had a lot of gas and a few poops and the retching seemed to get better. So we just don't know what's going on. Maybe the medication they gave him "backed him up" a little bit, maybe things stirring around in his lungs is doing it. Who knows. No one has really been able to give us an indication of what's going on.
His oxygen level is still not where it should be and he is getting a little "blow by" of oxygen off and on. We are all hoping and praying that he just needs to sleep it off and he'll be better in the morning. They have stopped his feeds because that seemed to be exacerbating the retching. They are going to try and just give him Pedialyte but if that doesn't work they will have to put in an IV.
I really just don't know what to say. I just hope that things look brighter in the morning.
We'll definitely keep you posted.
posted by Jen | 11:25 PM
2 Comments:
I truly hope that Edison is feeling better, and that all his troubles yesterday were a result of the tests/meds and not something else for you & M to worry about. Dinky has got to be the strongest little booger in the whole world to keep up with all these "blips". I will be thinking of you guys all day and hoping that he gets to come home "right quick". Feel better Dinky man, I love you!
Sue
I love you all...get some sleep, Jen, and feel better little Dinky!
Shan
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