Gosh! I can't believe I haven't posted all week! My how time flies when you're driving everyone in the medical field nuts :) (More on that in a minute). Edison is doing great! He is such a sweet, sweet baby. The other day as we were putting him to bed Martin and I realized that he hadn't cried all day. Not once. He complains a bit during therapy but that's it. I love this kid!!

His therapy is going really, really well. The other day he was sitting with his hands propped in front of him and our therapist was able to let go of him for over a minute! The only problem is he still doesn't have the "protective reflex" so he just topples over but he is getting more strength. We just need that refex to emerge.

Now, what I was alluding to earlier ... there are so many doctors involved with Edison, five, that it's hard to know who should be doing what. And there are certain issues where the doctors disagree so how should we handle that? It is all frustrating. I have spent this week waiting for calls back and many didn't happen. I feel a bit stranded and alone, particularly where Edison's feedings are concerned. Not even the oral feedings but his tube feedings. We aren't getting any guidance on how much to go up, when, how much he needs, etc and he lost a little weight (thankfully he's gained that back)! The feeding center has been focused mainly on the retching, and we are grateful for that, but this is also a critical time for growth! As a social worker it makes me more sensitive to those who may not be as pushy, or who are not educated and what a struggle that must be.

But whenever I get frustrated I always have that cheezy smiling, raspberry blowing, squealing, laughing bundle of sheer JOY to cheer me up :)