We were back to the hospital today for the swallow study and it was TERRIBLE! When we were in the NICU you're kind of in "medical mode" so you take things in stride. Now that we're home having things like this done is SO sad. They strapped Dinky onto a board and I do mean strapped, with his arms up over his head. They would occasionally rotate the board to get different angles. He was SO upset and crying so hard. So was his mom so Martin had to do the comforting for both of us. To make matters worse he couldn't really swallow the barium so they put an NG tube in (a tube that goes in his nose and down to his stomach). Oh, it makes my heart hurt just thinking about it again. The test didn't really show anything which is good and bad. It's frustrating in that it doesn't give us the answer we all are craving regarding his retching episodes and why they are occuring. We haven't talked to our surgeon yet to get his official opinion so hopefully he'll call tomorrow.

On the plus side we had a nice visit with our NICU friends including our nurses Michelle and Dana. It's always nice to visit!

The final insult of the barium they gave Dinky is that it causes constipation. So now we have a grunting, red-faced baby. Poor guy.

One final note, the minute we got home Edison had physical thearpy. We really like this therapist and she continues to be very confident about his ability to sit up and walk in the future. I guess for me the future seems so far away and at times I feel like we'll never get there. But there were times I didn't think we'd ever get here either and look how far he's come.