Here's a picture of Edison and Michelle! There's another sweet one of them but our computer is acting up tonight so I couldn't post it.
We went back to the hospital for Edison's upper GI study. They pushed in a lot of barium into his stomach through his g-tube and followed it on a video. It showed that his stomach empties VERY quickly. Because he's not having any ill effects from this (diarrhea, poor weight gain) it's not concerning and could be a good thing. It also showed that he is not having any reflux. So...what does it tell us?
We met with our surgeon afterwards who was encouraged that none of these issues showed up (we will have one more study next week-it got moved from Thursday). His thinking is that the Nissen fundoplication (where part of his stomach is wrapped around his esophagus to prevent reflux) is tight and squeezing the esophagus causing him to have a sensation that he needs to throw up, resulting in these retching episodes. It tends to happen more during his "bolus" feeds during the day (as opposed to his continuous feeds at night) so he wants us to try him on 24-hour continuous feeds at a much slower rate. We've been doing this since a little after noon and he has had 2 little episodes but they haven't made him as upset as they have been. So we'll try this for a little while and see if it helps.
One thing that happened today that I thought was so sweet....we were in the big outpatient registration area and I was standing at the desk and Martin was on the other side of the room with Dinky. I smiled and waved at Dinky and he just got the biggest grin on his face. It showed that his vision seems to be pretty good, and it just made me feel so good that he recognized me from that far away without hearing my voice or anything else. I love that kid!
We went back to the hospital for Edison's upper GI study. They pushed in a lot of barium into his stomach through his g-tube and followed it on a video. It showed that his stomach empties VERY quickly. Because he's not having any ill effects from this (diarrhea, poor weight gain) it's not concerning and could be a good thing. It also showed that he is not having any reflux. So...what does it tell us?
We met with our surgeon afterwards who was encouraged that none of these issues showed up (we will have one more study next week-it got moved from Thursday). His thinking is that the Nissen fundoplication (where part of his stomach is wrapped around his esophagus to prevent reflux) is tight and squeezing the esophagus causing him to have a sensation that he needs to throw up, resulting in these retching episodes. It tends to happen more during his "bolus" feeds during the day (as opposed to his continuous feeds at night) so he wants us to try him on 24-hour continuous feeds at a much slower rate. We've been doing this since a little after noon and he has had 2 little episodes but they haven't made him as upset as they have been. So we'll try this for a little while and see if it helps.
One thing that happened today that I thought was so sweet....we were in the big outpatient registration area and I was standing at the desk and Martin was on the other side of the room with Dinky. I smiled and waved at Dinky and he just got the biggest grin on his face. It showed that his vision seems to be pretty good, and it just made me feel so good that he recognized me from that far away without hearing my voice or anything else. I love that kid!
posted by Jen | 8:10 PM
2 Comments:
Wow! It sounds like the upper GI went really well. That is fantastic news.
I have to tell you and Martin that the blog and the pics that you have posted have really brightened up the past few days for me. (Work is tough this week!!) So keep on sending us your loving updates on our little man.
Much love, Sue
The test results sound good, so that's encouraging--and I can imagine what a thrill it was to know for certain that D saw you from across the room and recognized his mom! You love that kid, and so do lots and lots of other people who also love you for sharing him with us. love....
dobie
Post a Comment
<< Home