Tuesday, November 29, 2005

Another busy day for our not so little one. Today we went to see ophthalmology which I have decided is the hardest medical discipline to spell. When Edison was in the hospital I used to talk about how much endurance he had for all of the procedures and tests that he was put through. Those days are gone. Now that he has seen what life can be like (meaning being as pampered and spoiled as we can possibly make him) he has no tolerance for anything that deviates from that norm. So he was not a happy camper today. He cried the entire two hours we were there. Edison's eyes tend to turn inward, one so more than the other. So the doctor wants us to alternately patch them for one hour a day :( I was envisioning the old fashioned black eye patch but these are more like band-aids which means they are going to hurt! So we will start that tomorrow. We'll go back in 2 months. Worst case scenario is that he will have to have surgery to correct it but we are going to go on the assumption that that won't be the case :)

In other news, we are still fighting to try and get more therapy. I think we are going to be able to get physical and occupational therapy through our insurance, but we have limited benefits (we cancelled our night nurse because she comes out of the same benefit and he needs therapy more than we need sleep). So hopefully that will start soon. I am still frustrated with Early Intervention and think that he should be receiving more through them (as do our neonatologist and the developmental psychologist at the hospital) so I wrote our congressman today to see if he can help. I figured it can't hurt :)

2 Comments:

Blogger Shannon said...

You go girl!

9:00 AM  
Blogger Sue said...

Write to your assembley (sp?)person too! When I had trouble with my disability and unemployment when I was ill they were the ones who got it all straightened out for me. You never know...like you said it can't hurt!

Love you, Sue

12:20 PM  

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