We had a great day today with Edison who was in the best mood. He was absolutely giddy at times, squealing with delight. He finished with his test about 9 am and fortunately (albeit somewhat frustrating) nothing showed up. That's great, because it means he doesn't have apnea, reflux, or other breathing problems, but it's frustrating because it doesn't provide an answer to what happened last Sunday. We met briefly with our surgeon who basically said these spells are "unpreventable and unpredictable". He indicated we need everything at home to help address one if it happens including shift nursing. So he advocated that we not be discharged until that is in place. The goal is that there would be a nurse here overnight to give Martin and me a break as Edison will require constant monitoring.

While they are arranging nursing care the thinking is that we would be transferred to "Seashore House" which is intermediate care at the hospital. However that doctor expressed concern about infection control with respiratory viruses starting to crop up, so we're in limbo. I feel like we'll have more information tomorrow and we'll let you know then!

My parents have been in town visiting this past week. It's been bittersweet. They were here to help us settle in with Dinky at home but they never got to see him at home. They have been a huge help, though, stocking our freezer yet again. We look forward to the time they can visit their grandson at HOME!